Sharktooth?

[Sirber]

Naaah, Sharktooth is just an attentionwhore.:readguid: ;)

[Rafik]

Thank you all for your moral support. Luckily seems the symptoms are slowly vanishing and since yesterday it seems i can walk without too much problems.
Docs prescribed me Interferon for a long period of time (at least 10 years) and a constant monitoring for at least the first 6 months of therapy.

I don't know but there is certainly a multiple sclerosis patients association in Italy. They can help you a lot of because they can share their life experience with you and told you about side effects of the treatment (interferon) and how to deal with in daily life. I know also that research is very intensive in this domain (multiple sclerosis). I can make a little bibliography (state of the art) for if you want.
Hope you will be good !
PS: Although my mother was an english teacher, my english is horrible ... :D

[pest]

i'm very sorry to hear that sharktooth!
ms is a very bad disease.
lucky you ;), they've found it. sometimes
years are passing and doctors can't find
any obvious inflammations in the brain or the spinal cord.
me was under suspicion but my symptoms are
all psychosomatically. no i don't tell what it's called :p

i hope you learn to live with this
be good to you

[Teegedeck]

Oooph, I am so sorry, you certainly don't need such a thing to happen to you, Sharktooth! On the other hand, who does? But it's hard to have an objective view about that when you're the one who got it. Still find it hard to resign myself to some problems with my back. And find it even harder to see great guys like you and SeeMoreDigital with such things troubling them. Similarly, why are some extremely talented and hardworking blokes on this forum unemployed?

Aren't we a great bunch here?
Stiff upper lip, I say! :)

[Sharktooth]

well, i always thought "shit happens"... and if i have to eat it, it's just a matter of learning how to cook it...

[Teegedeck]

Good one... :)

[SeeMoreDigital]

I don't believe it..... I actually found myself thinking how I'd prefer to have it cooked :scared:

[Inventive Software]

I don't believe it..... I actually found myself thinking how I'd prefer to have it cooked :scared:
That's more than we need to know!

[feedback]

I thought this information may be of interest to Sharktooth or to some others in this thread.
This a New drug that has shown great promise.

See the link below.
http://content.nejm.org/cgi/content/short/354/9/899

Regards,

[Sharktooth]

i'm taking note of all links provided.
thank you all for your interest. it's very much appreciated:)

[jeffy]

Just all the best and a huge :thanks:.

Official site of the Associazione Italiana Sclerosi Multipla - AISM (Italian Association for Multiple Sclerosis), most important Italian private organisation dealing with MS.
http://www.aism.it/

Library of the Italian Association for Multiple Sclerosis: among most important collections in Italy of documents about MS and disability in general (email biblioteca@aism.it)
http://www.aism.it/includes/homepage/home_core_10700.asp?cat=10700

Multiple Sclerosis International Federation - comprehensive information on MS worldwide - multilingual site.
http://www.msif.org/language_choice.html

University of Maryland Medical Center
http://www.umm.edu/patiented/articles/who_gets_multiple_sclerosis_000017_5.htm

Advances in Multiple Sclerosis Management
Long Awaited: Direct Comparisons of Available Interferons
http://doctor.medscape.com/viewarticle/433622

Multiple Sclerosis File - the Center for Current Research
http://www.lifestages.com/health/multiple.html

National Multiple Sclerosis Society - NMSS, New York
http://www.nationalmssociety.org/

The mystery of multiple sclerosis — and why Canadians have it most
http://www.cbc.ca/news/background/health/ms.html

MULTIPLE SCLEROSIS
The first oral integrin antagonist in development for MS.
http://www.gsk.com/ControllerServlet?appId=4&pageId=402&newsid=377

Advances in Multiple Sclerosis
http://www.msadvances.com/

Vitamin D May Reduce Risk of Multiple Sclerosis -2007-
http://ms.about.com/b/a/257734.htm

Multiple Sclerosis Treatment
http://www.msactivesource.com/msavProject/msas.portal/_baseurl/twoColLayout/SCSRepository/en_US/msas/home/Multiple-Sclerosis-Treatment/index.xml

Medscape Today - Multiple Sclerosis Resource Center
http://www.medscape.com/resource/ms

Multiple sclerosis - Coping skills
http://www.mayoclinic.com/health/multiple-sclerosis/DS00188/DSECTION=9

The prevalence of multiple sclerosis (MS) in Italy is one of the highest in Europe....
http://cat.inist.fr/?aModele=afficheN&cpsidt=14145171

Anti-MOG autoantibodies in Italian multiple sclerosis patients
http://intimm.oxfordjournals.org/cgi/content/abstract/16/4/559

I couldn't have decided whether I should put here the links below.
These two site links are NOT meant as advertisements, but just reading the description might look inspirational for those coping with the disease. Some friends of mine having MS do like the testimonies of those coping for a very long time, yet not giving up easily.

Dorothy Thompson
"Courage, it would seem, is nothing less than the power to overcome danger, misfortune, fear, injustice, while continuing to affirm inwardly that life with all its sorrows is good; that everything is meaningful even if in a sense beyond our understanding; and that there is always tomorrow."

Martin Luther King, Jr.
"If you lose hope, somehow you lose the vitality that keeps life moving, you lose that courage to be, that quality that helps you go on in spite of it all. And so today I still have a dream."


Bits:
Some, like Amelia, use no mobility aids, while others use canes, wheelchairs, or electric scooters. All have had to face the challenges and limitations that MS has imposed upon their lives, and each has devised unique and often creative coping strategies.

Here are the inspirational stories of women, men, and children who live with this disease.
http://www.demosmedpub.com/prod.aspx?prod_id=9781932603019



This man has had MS since 1984:
http://www.copingandprevailing.com/msandme.html
http://www.copingandprevailing.com/testimonials.html


Sources:
http://www.gva-acqui.org/modules/weblinks/viewcat.php?cid=15
http://www.healthfinder.gov/orgs/HR0445.htm
http://www.wisdomquotes.com/cat_hope.html
http://en.wikipedia.org/wiki/Dorothy_Thompson
http://www.kait8.com/Global/story.asp?S=5457017&nav=menu67_25
and of course, Google http://www.google.com

[Sharktooth]

i already knew just some of those websites but you seem to spent a lot of time searching on the web.
thanks a lot. really :)

[writersblock29]

@Sharktooth

It's a shame that it takes stuff like this to sometimes remind us that we're all in this crazy game together. I know the free home-remedy advice can sometimes stike you as uninvited (oh, hell, who'm I fooling? "Irritating" is a pretty functional word), but it's all from the heart; no one of worth turns their back on others if there's a chance they'll be able to help.

In April of last year, my wife and I had to spend four months apart while I stayed in Seattle WA in order to get a donor stem cell transplant to treat (and hopefully cure) relapsed Hodgkin's Disease Lymphoma--my third relapse in five years. Recovery during any of the three very different treatment regimines was anything but fun. My personal business of videography suddenly became up in the air (I can tell you a good story about throwing up fast enough to still be able to film the first dance at a client's wedding... while as far as anyone knew I'd just excused myself to use the bathroom at the chapel). Thanks to sickening regimines of medications (and medications to counteract the side-effects of THOSE medications), my personal fitness training business pretty much folded. But you know what? In many ways, life is now so much better than it was.

For example, if I ever had any doubts as to how long my wife would stand beside me, they're gone forever now. Those four months in Seattle saw outrageous cell phone bills--and we won't get into how well-financed Alaska Airlines became because of us whenever she could grab a few days to come and see me. Once I returned home, she never faltered with her support. Never flinched once. Some couples are married for many years before they find that out about each other... We just celebrated our first "official" year together earlier this month, in fact. (We've actually been together for just over two years, but hey! It's our first year being married.)

I'm not biting off more than I can chew anymore. Life before all this saw me working a full time job (which gave me the medical insurance I otherwise would have overlooked) on top of running a videography and a personal training business. All I did was work. Now I actually know enough to step back and look at a sunset once in a while. And for the first time? I know I'm happy.

To make a short story long, my point is that things are always bleaker at the get-go. I know you'll both amaze and impress yourself with the strength you find inside of yourself (just in case that whole process hasn't already started ;) ). Just know that I'm amoung the many of us who are in your corner.

As Maximus would say: "Strength and honor," my friend.

[Sharktooth]

Thanks for the kind words. Im still have to understand some aspects of my sickness but i think i still have enough "Strength and honor" to keep fighting my own battles :)
Well, im even temporarily without an internet connection at home so i have more time to spend for some things i neglected in the past...

[olnima]

@Sharktooth, writersblock29 & all the people who have to carry "a big load on the back":

Best wishes from germany for You all and keep your head high!

Olnima

[martino]

Sorry to hear the bad news Sharktooth, and I'm hoping that you'll get better with time and overcome all your troubles and difficulties.

"Never loose hope, never loose faith, because that would mean loosing everything that you have."


Sorry for the bad level of my own quotes...

[writersblock29]

@olnima

Thanks! :)

[Henrikx]

@Sharktooth
I know a cloister,there is praying 24 hours .
I write your name into the prayer list.
That gives power and hope, I believe on that !

[HyperDrive]

Research never stops, Sharktooth. Take a look at this interesting Wikinews article (http://en.wikinews.org/wiki/Canadian_mouse_study_shows_hormone_associated_with_pregnancy_may_reverse_MS) I just came across this morning. Promising results, indeed!
Best wishes from Portugal, to you and everyone fighting similar battles. The war is not over! :)

[Tagert]

aww :(

I hope you get better Sharktooth !

[shadowchen]

Get well soon, friend.u are the pure breed.

[Sharktooth]

Thanks a lot

[JarrettH]

are you better yet? now? :):devil::):cool:

[Sharktooth]

im not feeling better but i can connect to the internet now... ;)

[G_M_C]

im not feeling better but i can connect to the internet now... ;)

Well, that might make you feel a bit better :)

Hope that you keep doing your hobby's, in spite of the illness, and that not all is as bad as it might seem now.

We keep hoping that something is found to help cure this difficult disease. It is one of the reasons i keep participating in things like Folding@Home. And we keep hoping something is found soon !

[PuzZLeR]

Sharkie, my prayers, as well as my best wishes, go out to you as you fight this battle.

Geordie.

[imcold]

welcome back \o/ :)